We've been trying to make the most of the warm weather and sun, so have spent more time out as a family over the past week so have not really had the chance to update the blog....i am useless at this!! In all honesty though, nothing significant has happened recently anyway!!
We had a lovely bbq on Sunday and yesterday we had a chill out day and spent most of it in our pj's!! I tend to relish chill out days at the moment, as they can be quite few and far between! Some weeks we hardly spend any time at home and menial tasks like washing, hoovering etc can get neglected, so when I finally get a chance to catch up on housework, it takes up most of the day. Chill out days literally involve sitting on the sofa with the girls doing nothing but watching Spongebob (who both girls love) or catching up with my trash tv while the girls play....BLISS!!
Oh last night, we took the girls to meet Dez's nan. She lives in Scotland and doesnt visit often, so it was the first time the girls and I had met her, and she was lovely! True to form, Evie was quite miserable and wouldnt go anywhere near her Great Nanny but Lauryn was so excited and made up for Evies lack of enthusiam, she loves to meet new family!!
Health wise, Lauryn is ok at the moment, though I have been panicked a few times. Lauryn started complaining that her back is sore, and upon examination appears to be coming from the sites where her chemo is administered and bone marrow is aspirated. I have left it and not mentioned anything to the doctors yet, because I want to see how it goes but if its still causing her pain I will tell the doctor on Friday. She has also been having some tummy pains, which I did ring Addenbrookes about, and mentioned to our consultant today at Pboro. He examined Lauryns tummy and couldnt find anything untoward and isnt concerned, so I have to try not to panic about it.
I cant say that this whole situation has made me a paraniod wreck because to be honest, I always have been like this, having a child so poorly has only confirmed my old worries and fears and has made me a more paranoid wreck!!!!! I sometimes remember the things that would keep me awake at night before any of this happened and I realise how ridiculous it was to spend so much time worrying about things that could happen but didn't. This probably doesnt make sense,but basically its made me realise that life is too short to waste, if somethings going to happen, it will happen whether I worry about it or not, so I may aswell just enjoy myself instead of whittling.....easier said than done sometimes!! Lol!
I did take Lauryn into peterborough this afternoon though because I noticed a few new black bruises appear as well as some petichi (small blood spots) on her neck. These are the common signs that her platelets have or are dropping so I take her in for blood tests incase she needs a transfusion. The thresholds for a transfusion are 10 for platelets and 8.0 for her haemoglobin (hb), however if she is very symptomatic but they are slightly above the threshold, they will transfuse.
Its an irritating part of the treatment because it happens so often, her blood counts drop and she needs transfusions. Platelets arent too bad because they take an hr max, but blood transfusions run for a minimum 4 hours....team that with having a blood test, waiting 1-3 hrs for the results, then waiting 2-3 hours for the bloods/platelets to be sent from another hospital, it can make a loooong day!! Today took 3 hours, but that was just for the blood test results...her platelets had dropped from 200 last monday to 40 today. So no transfusion, but a sure sign that the chemo is taking its toll on her bone marrow. Hopefully the count will come up in time for Fridays chemo or she wont be able to have it....we shall see on thursday.....!
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