We managed to stay in contact, even after leaving Addys, and have kept up to date with our childrens progress. A few weeks ago, Max took a bad turn, and a scan revealed that he had relapsed. This news was devastating as there is no cure for a relapse in Neuroblastoma in the UK. Linza and Max were told that there were weeks left. However, Max fought and they were given news that there was a hospital in New York that offered a trial treatment, but at a huge price...$350,000. Fund raising began, but unfortunately Max lost his brave battle against Neuroblastoma and passed away this week. I am still at a loss for words as to what the Corp family must be going through, and can only hope that they find strength to cope together as a family, as they have always done. Max was a brave little boy, and endured suffering that noone should go through, let alone a baby. Rest in Peace, Max Corp. x
Thursday, 18 June 2009
A sad week
I really don't feel like writing much on here at the moment, but am going to make special effort today! Unfortunately we had some bad news. When Lauryn first got diagnosed back in July last year, we spent 4 weeks in Addenbrookes whilst she had her first block of chemo. Whilst we were living in the hospital, we met Linza and Steve Corp, whose 5 month old son, Max had been diagnosed with Neuroblastoma a week before we arrived. I felt like we were all sharing the same emotions, and were going through the same initial stages together, and whilst our time in Addenbrookes was extremely difficult, we also shared times where we could laugh together in the parents room and make the best out of an awful situation and environment. I was so sad to leave them when Lauryn got discharged, and everytime we have been back since I have missed seeing them in the room next to us.
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I remember baby Max well. His mummy, Linza, came up to me when we first were admitted on 25 July and offered me support. I will never forget the kindness of Steve. Gabriel was crying for "hot chips". We had only received the dreadful news that Gabriel had a brain tumour on the Friday so we were just 2 days into our stay and did not know the 'ins and outs' of Addenbrooke's. Gabriel had not eaten a thing for weeks and all of a sudden wanted hot chips at about 6am on a Sunday morning. I recall crying in the corridor as I could not get him the one thing he wanted. Steve saw me and minutes later returned with hot chips. At that moment what a hero he was to me. It is so so sad about baby Max - such a loved little boy. It is simply not fair.
ReplyDeleteRest in peace little Max.
Love Gabriel's Mummy, Christine
I remember that well, Christine! I remember when you first came in and it was only a week after Linza and I had arrived, so we knew exactly what you were going through, especially as you and I both had newborns.
ReplyDeleteI truly feel devastated for them, it just is not fair.
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