Wednesday, 1 April 2009

More Park and Sun!!

Well, yesterday kicked off 5.30am, travelled down to Cambridge to start Lauryns Capizzi chemo block. As Lauryn is nil by mouth, none of us (except for Evie) eat until she comes out of anaesthetic. This, teamed with such an early start, makes everyone ever so slightly grumpy!!! The apprehension that we might also be turned away due to Lauryns cough was also on my mind, however, after a quick chat with the doctor and checkover, we were given the go ahead!

So Lauryn had her first dose of Methotrexate yesterday and we returned today for the second dose and vincristine. Tomorrow, she has her Peg Aspariginase. Lauryn dreads her Peg, it is a chemo injection put into her thigh muscle and it HURTS.  Over the course of the treatment Lauryn has had to endure many of these injections and each time is as difficult as the first. It is a traumatic experience that I always dread, tho not half as much as Lauryn does. I now have to talk in code and spell, P.E.G to the nursing staff when it is due so not to worry Lauryn, but she has cottoned in to this so I know have to rethink my plan. Most of the time, the nurses know that the word PEG must not be mentioned but sometimes we get someone new and just when I think i've got away with it they'll give the game away and Lauryn finds out! 

We finished quite early today at the hospital so, as it was hot and sunny out, we decided we'd go to Nandos to stuff our faces and then searched Sat Nav for a nearby park in Cambridge to spend the rest of the afternoon at. We found a spot along the river, so had a lovely day again with the girls, playing in the park, walking along the river and eating yet more ice cream! Hopefully we were successful in taking Lauryn mind off tomorrow.

We found out on Tuesday that we only have 16 weeks of intensive treatment left, which takes us up to August where we will then go onto Maintenance. On hearing this, we tried to contact our Clic Sargent Social Worker to arrange one of the charities holidays for August. The holidays can be taken at certain holiday parks dotted around the UK and one hotel in Scotland. They are free to families and I have been advised that if needed, we would have access to a local hospital in whichever area we are holidaying. 
This has given us something to look forward to, so I hope we can get a break booked!! 

1 comment:

  1. Roll on August,good health, and no more peg!
    Love you lots Lolly Pops!

    ReplyDelete