Wednesday, 18 March 2009

ARRRGGGHHHH!!!

Starting to realise that this blog is becoming a place where I constantly moan....oh well!!

We had a bit of a frustrating day today courtesy of unorganised hospitals! Whats new there?! Day started with me going to see the dentist as I've had toothache since last week, but not been able to make it in to get it sorted as was in hospital with Lolly. Going to dentist not really that bad tho, because he is rather dishy....anyway, apparently my wisdom tooth is coming through and because I cant have anti-biotics, thanks to boob monster Evie, I will have to grin (haha) and bear it til it makes an appearance.

Had rung the ward today to tell them we would be there at about 1.30 for Lauryns anti-biotics, due to getting out of dentist later than anticipated, we arrived at 1.45 to pboro childrens ward. Ward was full, so we were taken to the parents 'suite' (comprising a bed, chest of drawers and bedside cabinet) to wait.....and 'wait' we did.....it was 2 hrs before ANYONE even came to see us. Apparently there had been a mix up with medicines....great. I hate that room anyway due to it being the place where the leukaemia was confirmed by the laughing doctor back in July. Plus, the room was stuffy, boiling hot (we were sweating), couldn't open the door (because Lauryn neutrapaenic she has to be isolated), with no tv or anything, needless to say both girls were getting fed up and so were we. Lauryn decided she wanted to play hide and seek.....she gave up that idea when she realised she could actually only hide under the bed! 

Whilst waiting, I discovered that Lollys gums started bleeding (sign her platelets might be low), she complained that she had a sore throat and that she has a funny white stuff on her tongue, so asked doc to check it all out. Still waiting for blood results and swabs to be tested....

Also spoke to another mum who I regularly see, she has a 13 yr old son who has Leukaemia and amongst the moaning we were doing about everything, she told me I need to look into getting in touch with Clic Sargent to arrange one of their holidays. She went to Scotland and said it was lovely, so I will definately get it booked at some stage, I think we all deserve a little break! 


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